What is ME/CFS?
Do I have ME/CFS?
- Simple Diagnostic Criteria (Institute of Medicine)
- Extended Diagnostic Criteria Quiz (International Consensus Criteria)
What’s the latest in the ME/CFS world?
How can I help? How can I advocate?
Why so many names? Why not just CFS?
- Explanation of the naming – ME or ME/CFS is preferred.
What are some online communities I can join?
- The Science for ME forum
- Facebook: 25% of ME (for severe people)
- Twitter: List of useful accounts
More Communities
- Reddit: The r/cfs Community Disclaimer:
- DO NOT join the r/mecfs or r/cfsme communities on reddit. They are owned by David Jameson, a notorious psychologiser of the disease.
- While generally okay, the r/cfs community has a few users who promote unproven treatments.
- Discord: The MercyME community
- Lemmy: The c/mecfs@kbin.social community
- Sadly, this community is mostly inactive, but Lemmy is quickly growing, so feel free to be the people who make it active :).
Severe and Very Severe ME/CFS
- Hospital Admission vs Pallitative Care (scroll down; third video)
How to manage ME/CFS?
- ME Association “treatment” booklet (2024)
- Mayo Clinic Proceedings (2023)
- Germanophone Consensus (2024)
How do I measure/explain my level of Disability?
- The FUNCAP Questionnaire is specifically designed to measure disability due to PEM. You can take an online version here.
The Dark History of Psychologisation
- UK News Article Exploring it (2024)
- Documentary: The Tangled Story of ME/CFS (2021; 1 hour)